In recent years we have witnessed rapid development in both the research and manufacturing of new drugs and treatments that give us hope for our children and their future. Rare monogenic diseases, such as Friedreich’s Ataxia, are the focal point of medical development, with gene therapy being now a realistic hope.
As scientific research for treating and curing Friedreich’s Ataxia moves forward quickly, I feel that we are on a critical point- a point where we need to collectively increase and direct our efforts toward making the treatments accessible to Greek patients as soon as they become available.
In this hopeful and auspicious spirit, the Hellenic Friedreich’s Ataxia Association increases its efforts and aims to; incentivize the Greek state and mobilize everyone (person or legal entity) available in order to ensure that every single patient in Greece gets the opportunity to access innovative treatments which will cure this serious genetic disease.
The only way to reach our goal is: working together, in a systematic and organized manner, because we have a mutual, merciless enemy which is, in the interest of keeping our loved ones healthy and safe. All our efforts are focused on our loves ones who suffer from this genetic disease and their future.
I am addressing to every single one of you, every company and institution separately and I ask for your help to materialize our plan; saving our children and giving them hope, not only for an improved quality of life but also for an effective cure.
These patients are true heroes but are also in dire need of the help and support of us all.
Let us give them the life that nature has deprived them of. Together for a cure.
My deep appreciation
President of the Hellenic Friedreich’s Ataxia Association